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Person-Centered
Planning for Later life: Death and Dying - A Curriculum for Adults with
Mental Retardation
by H.L. Stern, E.A. Kennedy, & C.M. Sed, (2000)
This training curriculum helps adults with developmental disabilities
understand death, dying and loss. It covers the concept of death; experiencing
and coping with grief, mourning, comfort, and support; and death-related
rituals (visitations and funerals).
The curriculum consists of five in-class lessons and one field
trip, which emphasizes active participation through both verbal
and visual presentation of materials.
The Instructor's guide provides a script for each lesson and
includes guidelines for planning and administering each lesson. Each
participant has a Student notebook that accompanies the instructor's
training curriculum. Each participant chooses a support person to help
him/her review the lessons and complete assignments.
The curriculum is designed to educate individuals about death and dying.
Specifically , the aim of the curriculum is to teach adults about:
- the concept of death - to fully understand what death means;
- the issues related to loss, grief, and mourning - to be able to
recognize feelings, thoughts, and behaviours experienced whenever
a loss occurs, regardless of the type of loss, and to learn how to
comfort others who have experienced a loss;
- death rituals and social norms - to learn about what happens at
death-related events such as visitations, funerals, etc. as well as
how to act appropriately at such events;
- choices they can make related to their own deaths - to be able to
make informed decisions about end-of-life events such as obituaries,
eulogies, and funerals.
References to God and/or any specific religious practice are of a general
nature . . . The instructor has the discretion, depending on the context,
to determine how much or how little, religious and or ethnic perspective
should be incorporated.
Each lesson provides the goal, objectives, preparation, materials
needed and instructor's script. Pilot testing was with men and women
aged 50 years or older with mild to severe levels of developmental
disability. The term "mental retardation" is used.
| Available from: |
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The Clearinghouse on Aging
and Developmental Disabilities
Department of Disability and Human Development,
University of Illinois at Chicago
1640 West Roosevelt Road
Chicago, Illinois 60608-6904
Telephone: (312) 413-1860
Fax: (312) 996-6942
E-mail: rrtcamr@uic.edu
Web site: www.uic.edu/orgs/rrtcamr/index.html
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Description of Resource: 61 pages, Instructor's Guide & 39 pages of
pictures/graphics used in curriculum, 17 pages, Student notebook, reproducible,
3 ring binder.
Approximate Cost: Instructor's guide and Student Notebook: $25.00 (US)
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